During the ENCORE retreat on July 2, healthcare professionals, researchers, and other stakeholders came together to reflect on the future of our center of expertise. The goal: to collaborate even better, share knowledge, and further improve care and support for people with a rare neurogenetic disorder.<\/p>\n\n\n\n
In various working groups, ideas were developed around themes such as the smart use of healthcare and research data, strengthening collaboration between different conditions and disciplines, and making knowledge accessible to patients, parents, and healthcare providers.<\/p>\n\n\n\n
One of the plans is the further development of the ENCORE website. In addition to information per syndrome, in the future we also want to offer information on themes that are recognizable to many families, such as sleep, behavior, and communication. This will make it easier to find answers to common questions, regardless of the diagnosis.<\/p>\n\n\n\n
It was also discussed how we can better monitor and support new treatment studies and clinical trials. In addition, we are working on ways to make the expertise within ENCORE even more visible, so that professionals can find each other and collaborate more easily.<\/p>\n\n\n\n
The strategy afternoon generated a lot of energy, new ideas, and concrete follow-up actions. Various working groups will get to work on these in the coming period. Together, we continue to build a strong connection between care, research, and the daily lives of patients and families.<\/p>\n\n\n\n
De heimiddag werd afgesloten met een lekkere BBQ aan het strand in het kader van teambuilding.<\/p>","protected":false},"excerpt":{"rendered":"
Tijdens de ENCORE-heimiddag op 2 juli kwamen zorgprofessionals, onderzoekers en andere betrokkenen samen om na te denken over de toekomst van ons expertisecentrum. Het doel: nog beter samenwerken, kennis delen en de zorg en ondersteuning voor mensen met een zeldzame neurogenetische aandoening verder verbeteren. In verschillende werkgroepen werden idee\u00ebn uitgewerkt rond thema\u2019s zoals het slim […]<\/p>\n","protected":false},"author":5,"featured_media":5446,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[3,1],"tags":[],"_links":{"self":[{"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/posts\/5445"}],"collection":[{"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/comments?post=5445"}],"version-history":[{"count":3,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/posts\/5445\/revisions"}],"predecessor-version":[{"id":5449,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/posts\/5445\/revisions\/5449"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/media\/5446"}],"wp:attachment":[{"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/media?parent=5445"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/categories?post=5445"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/encore-expertisecentrum.nl\/en\/wp-json\/wp\/v2\/tags?post=5445"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}