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Shine a light on the life of NF patients!

Neurofibromatosis (NF) is a genetic condition, affecting 1 in 2,500 people and affecting more than 2.5 million people around the world. This means that a child with NF is born every 14 minutes. NF is therefore the most common rare disease, or as we say "the biggest little disease".

In NF patients, tumors can grow on nerves all over the body, leading to serious complications such as blindness, deafness, bone deformities, deformities, behavioral and learning disorders, chronic pain and aggressive cancer. The latter also makes NF life-threatening. NF cannot be treated and there is no prospect of a cure (yet). What and when complications will arise cannot be predicted and will remain uncertain throughout your life.

Some of the complications of NF are visible, but many problems cannot be seen from the outside. That is why we think it is important to make NF visible. And we will do just that on May 17 during the "NF awareness day". On this day, which has been organized internationally for a number of years, many impressive buildings, bridges and monuments worldwide are illuminated in blue and green, the international colors of NF. Heartwarming for all involved to see that they are literally put in the spotlight once a year. Shine a light on NF!

With the support of 'Lets beat NF', the Erasmus MC will turn on the special lighting in the international NF colors to make NF visible.

Click here for more information about the NF awareness month.