Subsidy of more than 180,000 euros for research into the quality of life of adults with NF1!
Sarah van Dijk, nurse specialist at Erasmus MC, has received a personal grant of more than 180,000 euros for her research into improving the quality of life of adults with neurofibromatosis type 1 (NF1), the DAISY study (read more here ).
Sarah wants to use the money to identify what impacts the quality of life of NF1 patients and to develop disease-specific measurement tools to optimize clinical care. Van Dijk: “Measuring quality of life is essential to personalize NF1 care and thereby improve quality of life. That is where my research should improve.' You can also read more about Sarah's study on the Amazing Erasmus website.
We congratulate Sarah on this personal grant and wish her every success with her research. We are confident that Sarah will contribute to improving the quality of life of NF1 patients.